Site Search

When Jon Longenecker started with ASK to create services and programs for our families in the Fredericksburg area, he saw an opportunity to create something amazing. As a retired special education teacher, he was accustomed to creating new and different approaches to learning and social challenges with adolescents and young adults, and he knew that he could help build the same type of programming and services in Fredericksburg that are offered to young pediatric oncology patients in Richmond, ASK's home base. “The more I learn about ASK and its mission of making life better for children with cancer, the more I fall in love with this organization and what it accomplishes on a daily basis,” says Jon. “I wasn’t aware of the learning and social difficulties that children with cancer can experience until I discovered ASK and all of the ways that ASK reaches each child, sibling and parent. I’m more convinced than ever that we can help mitigate some of the challenges these children face during treatment and in survivorship.” Perhaps one of Jon’s most important initiatives is the after-school tutoring program. Here, kids are helped not just with their schoolwork, but something else just as important: socialization and building long-term friendships. “These kids experience so much isolation because of treatments,” continues Jon, “and their mental health needs are as important as their physical needs. We’re able to build lasting relationships by meeting once a week and helping each other with homework, but also through games, field trips and just having the opportunity to be teenagers. This is vital to their continued development, in spite of a thing called cancer.” “I go to the kids’ school functions and sports games, and they have built such strong friendships as a result of our programs." Jon hit the ground running by hosting a make-your-own-pizza party, a tour of the local airport and museum, a movie night, a fishing derby and so much more! Plans are in the works for a Fredericksburg Nationals night and a week of summer camp. “I go to the kids’ school functions and sports games, and they have built such strong friendships as a result of our programs. They are starting to attend one another’s high school plays and camps outside of ASK events. It's really incredible to see their support of one another develop and grow organically as a result of their time spent with each other here at ASK." “I am a man of faith and I know I’m where I’m needed most. I’m so excited to be part of such an impressive team of incredible people. I know we are making a difference in the lives of those affected by childhood cancer and I want to see our programming and participation grow exponentially. Thanks to generous donors, we’re on our way!”

The moment we've been waiting for has finally arrived! Earlier today, the state budget was signed and approved by Governor Youngkin. This means that children with cancer will receive dedicated state funding for the FIRST TIME in Virginia’s history. In a nutshell, this new funding will: Provide a Pediatric Cancer Support Navigator for each of the five pediatric cancer treatment centers across Virginia. Create a bridge between a patient's medical team and their school to ensure they don't fall behind. Help EVERY young cancer patient transition back to school during and after treatment.​ This amazing win wasn't achieved by ourselves or overnight. We've worked closely with the Virginia Childhood Cancer Network members as well as our advocates throughout the state over the past four years to make this a reality. This also would not have been possible without the incredible pro bono guidance and support of Robb Bohannon and Hunton Andrews Kurth. While Central VA is our home base, we believe every family in Virginia deserves this support. #MakingLifeBetter for kids with cancer is the very heart of our mission, and this is the next step in fulfilling it. Thank you to everyone who lent a hand to make this possible!

Photo: ASK families hugging after the Moment of Remembrance at the ASK 5K & Fun Walk on May 4, 2019. On July 31st of 2019, I joined the team at ASK and it has been a wonderful six months of learning and orienting to VCU. Before I joining ASK, I worked as a chaplain for a pediatric palliative care and hospice program in the Richmond area. In that role I was able to work with some amazing families where a beloved child died. Through my five years of service to this organization, I was able to gain a deep perspective around grief and loss. Today I would like to address an aspect of bereavement that I feel is very important. I will refer to it as 'When you are ready.' Whether sudden and unexpected or due to a long chronic illness, the death of a child is the most stressful and traumatic event that any human can experience. It is unlike almost any other type of loss because it goes against the natural order that life teaches us. A parent is supposed to bury and grieve the loss of a grandparent, parent or aunt because they are older and have had a longer life. But burying a child is unnatural. An unnatural event makes us question everything in our lives because it rocks us to the core of who we are and shakes the foundations of our beliefs. Because of this, getting into a natural life order again after the death of a child is incredibly difficult. Life for the grieving family is now more like being in a haze and less like any reality that existed before. The time period after the death of a child is an unnatural state of being, and therefore it is important to remember the phrase, 'When you are ready'. Here are some examples: When you are ready... Share with someone you do not know well the story of your child and all of the beautiful and unique qualities that made them who they were. Share your experiences with someone who is going through the loss of a child. Talk to a counselor about the death of your child and how it is affecting you and your family. Ask a trusted friend or family member to just sit and listen to you for awhile without giving you feedback. And in turn, sit and listen to someone else share the stories of their heart without you giving them feedback. There is power and healing in being heard as you share your story. Go on a trip somewhere your child loved to go or somewhere they always wanted to go. Go on the trip for them and enjoy the things they would have enjoyed. Celebrate their life. Reconcile a relationship with someone where there has been discord. You know better than anyone that life is too short for holding a grudge. Doing these things will life you out of the pit of darkness and allow you to step forward into a brighter direction. Part of my role as the chaplain of ASK is to work with bereaved families. You may be hearing from me in the near future as I attempt to offer support to you and your loved ones. Please know, I do not take it personally if you do not respond right away. I will still be available to you 'When you are ready'. If you are ready now, please feel free to email me to set up a time to talk. Until then, be patient with yourself as it takes time to heal from such a deep wound. Email Rich: Add link here

ASK dads Rich Chandler (left) and Sean Adams (right) reviewing the 5K course route with ASK volunteer Henry Finn. It's 4am and Rich Chandler is busy setting up orange street cones for the next ASK Childhood Cancer Foundation race. He's led the logistics for the ASK 5K & Fun Walk and ASK Donut Run for the past fifteen years and he doesn't plan to stop any time soon. "It's important to me as a business owner and human being to give back to our community and share our many blessings," says Rich. "And we've been incredibly blessed." In 2000, Rich's daughter, Kaitlyn, was diagnosed with a rare form of leukemia, Acute Myeloid Leukemia, typically an adult leukemia. At age three, Kaitlyn's only chance of survival was a bone marrow transplant. Rich considers it a miracle that a donor was found in Germany, a military officer who flew back to the United States to provide Kaitlyn the bone marrow she needed to survive. Now a senior at the Virginia Commonwealth University School of Engineering, Kaitlyn is health and looking forward to life after graduation in May 2020 and Rich's commitment to ASK is even stronger. "We became involved with ASK because of Kaitlyn's diagnosis. ASK was there for us every moment of Kaitlyn's diagnosis and treatment and I want everyone to know what an incredible team ASK becomes with every family diagnosed with childhood cancer." Rich says he's a lifelong ASK volunteer, "I want to help spread the contagious positive energy that comes from ASK administrators, clinicians and volunteers!"

Allison was diagnosed with Non-Hodgkin's Lymphoma in 2010, when she was 14 years old. In 2011, she relapsed and had a stem cell transplant to save her life. She knew she loved life and was willing to fight hard for it, but she had no idea that she would eventually find the love of her life through her cancer diagnosis and volunteerism with ASK. As a survivor, Allison became a dedicated volunteer for ASK, wanting to give back to the organization that had done so much for her. She looked forward to being a counselor each summer at ASK Summer Camp, where she met another volunteer, Henry. He was the babysitter of an ASK kid and was happy to help with camp when asked by Amy Godkin, ASK's executive director. "I felt a connection with the kids that attended camp, year after year," says Henry. "This is a rare and wonderful organization where everyone is willing to get into the trenches and do whatever it takes to make life better for children with cancer, and I love that!" Allison and Henry saw each other at camp every summer and then reconnected Allison's senior year in college. They started dating and three years later, in October 20019, they married. "Their wedding was absolutely beautiful and I was so honored to see their story come full circle," exclaimed Alma Morgan, ASK education coordinator. "It's a beautiful love story. I believe that we go nowhere by accident - Henry and Allison came to camp for a reason!" Henry and Allison are very involved in the ASK 5K & Fun Walk and the ASK 5K Donut Run. They can be seen setting-up course cones before each race and staying till the end to breakdown the course. "It's so important to me to give back," says Allison. "I love that ASK is a full-service organization with services and programs that help from diagnosis to remission. The staff and volunteers do so much good work!" Congratulations Allison and Henry!